Perceived fatigue and coping experience in elderly patients with chronic obstructive pulmonary disease: A qualitative study
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摘要:
目的 了解老年慢性阻塞性肺疾病(COPD)患者的疲劳感知与应对体验,从患者角度理解疲劳现象,为医务人员进一步认识疲劳、管理疲劳提供参考。 方法 采用现象学研究方法,于2021年5—10月,选取宁夏医科大学总医院呼吸与危重症医学科就诊的老年COPD患者为研究对象,对患者进行半结构式访谈,最终访谈患者17位。运用Nvivo 12软件及Colaizzi 7步分析法对访谈资料进行整理和分析。 结果 老年COPD患者的疲劳感知可归纳出3个主题,(1)备受困扰的疲劳症状:患病后疲劳症状持续存在;疲劳症状晨轻午后加重;疲劳急剧加重是COPD急性加重的预兆;疲劳常与多种躯体症状同时存在。(2)难以摆脱的“禁锢”:躯体活动受限;社交活动受限。(3)承受沉重的心理负担:负性情绪的困扰;牵连家人的无奈;背负沉重的经济压力。老年COPD患者的疲劳应对可归纳出2个主题:(1)积极应对,寻求帮助;(2)消极应对,漠然置之。 结论 多数老年COPD患者的疲劳症状持续存在,且具有时间变化特征和可预测病情变化的特点,疲劳对老年COPD患者日常功能及心理状态的影响是降低其生活质量的关键。然而,受多种因素的影响,多数患者的疲劳症状仍未被积极有效的控制。因此,医务人员有必要认识到疲劳给患者造成的严重不良影响,切身感受和理解患者的疲劳,早日制定出适合我国老年COPD患者的疲劳症状管理方案。 Abstract:Objective To understand the perceived fatigue and coping experience in older patients with chronic obstructive pulmonary disease (COPD), and give a description of the fatigue phenomenon from the perspective of patients, providing medical workers with a reference for further understanding and management of fatigue. Methods A phenomenological research approach was used. Semi-structured interviews were conducted with elderly COPD patients from Department of Respiratory and Critical Care Medicine, General Hospital of Ningxia Medical University from May to October 2021, and 17 cases were finally enrolled. Nvivo 12 and Colaizzi ' s seven-step method were used for data processing and analysis. Results Three themes of perceived fatigue in elderly COPD patients emerged from the analysis, (1) Troubled fatigue symptoms: fatigue symptoms persisted after COPD; Fatigue symptoms were lighter in the morning and worse in the afternoon; Acute exacerbation of fatigue was an omen of acute exacerbation of COPD; Fatigue often coexisted with multiple somatic symptoms. (2) Seemingly unconquerable "constraints": limited physical activities; limited social interactions. (3) Heavy psychological burden: suffering from negative emotions; helplessness in troubling families; influence of heavy economic burden. Two themes of coping with fatigue in elderly COPD patients were summarized: (1) actively coping and seeking help; (2) passively coping and indifferently handling. Conclusion Fatigue symptoms persist in most elderly patients living with COPD, which can vary over time and predict the changes in condition. Fatigue impairs their quality of life crucially through negatively affecting their daily functioning and psychological state. However, due to the influence of many factors, fatigue symptoms in these patients have not been actively and effectively controlled. Therefore, it is necessary for medical workers to realize the serious adverse impact of fatigue, feel and understand fatigue from patient perspective, and take actions to develop a fatigue management scheme applicable to Chinese elderly patients with COPD as soon as possible. -
Key words:
- Chronic obstructive pulmonary disease /
- Fatigue /
- Phenomenology /
- Qualitative research
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表 1 研究对象一般资料(n=17)
Table 1. General information about the study subjects (n=17)
编号 年龄
(岁)性别 文化程度 婚姻状况 职业 吸烟年数 病程
(年)合并症
(个)BMI 医保类型 FSS评分
(分)P1 70 男 小学 已婚 务农 48 5 0 22.22 居民医保 7 P2 71 男 小学 已婚 务农 36 20 0 23.14 居民医保 6 P3 69 女 文盲 已婚 务农 0 1 0 16.65 居民医保 7 P4 63 男 高中 已婚 退休 0 15 0 23.24 职工医保 6 P5 66 男 小学 已婚 务农 45 2 0 20.20 居民医保 5 P6 76 男 小学 已婚 务农 55 1 0 16.33 居民医保 7 P7 70 男 小学 已婚 务农 46 2 2 22.78 居民医保 6 P8 71 男 小学 已婚 退休 50 1 1 24.44 职工医保 6 P9 63 男 小学 已婚 务农 42 5 0 20.86 居民医保 6 P10 67 男 初中 已婚 务农 50 2 3 17.97 居民医保 7 P11 65 男 初中 已婚 退休 42 33 1 16.29 职工医保 6 P12 76 男 初中 丧偶 退休 55 7 0 19.72 职工医保 6 P13 72 女 文盲 已婚 务农 0 20 0 20.44 居民医保 6 P14 74 女 文盲 已婚 务农 0 20 3 15.55 居民医保 6 P15 67 男 小学 已婚 务农 44 15 1 17.41 居民医保 6 P16 64 男 初中 已婚 退休 30 15 0 24.02 职工医保 6 P17 66 男 初中 已婚 退休 40 3 1 23.88 职工医保 7 注:FSS均分≥4分表示存在疲劳。 -
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